Yesterday was our follow-up with Pipo's nephrologist. He is very encouraged with how quickly Pipo responded to the meds this time. Everything looks great, and it seems we are headed into remission again. The only bummer is that the new immunosuppressant he is on is not going away any time soon. I naively thought it was similar to the last one, and he would be on it for a 3 month round or so, and then hopefully be med free for a while. But this is a drug he will be on for up to a year, or more. The good news is that this will hopefully get him off the prednisone, an keep him in remission prednisone free. It kills me to think what the years of prednisone have done to him, but with this drug, we'll be able to minimize it now, and hopefully he can do a little more catching up in the growing department.
Although if you judge by attitude he is way bigger than most 11yo boys I know!
3 comments:
What a lot to go through! I wouldn't even know what a nephrologist is except that I got referred to one after finding out last year that I have kidney disease (no surprise due to family history). He must be a really strong little guy.
Good news. I'll be keeping you all in my prayers.
Becky
What great news! I'll be praying...
God Bless,
Jane
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